Monday, November 17, 2008
The Update!!!
I know I’ve been a naughty boy ( No not that type of Naughty! Get your minds out of the gutter!) Just lazy, unproductive as well as depending of you ask down right incorrigible (Netty).
Well let me disclose the major concern that has me distracted. I know I haven’t been in the mood to be writing updated about my condition. It’s just I needed time to the adjustments of living back with Netty & Jack. But also about 3 weeks ago, I had a rough week health wise. It seems I can’t go longer than two months with out having a seizure.
It happened two days before my 35th birth day, I had a major one while watching Tv in bad. It was so intense in its on set that I Blacked out and fell off the bed and either my arm or my leg was banging against the floor. I did not regain coniousness until Netty & Jack came upstairs and was yelling my name. At that point, still woozy, I crawled back into bed saying I was ok. However, a few hours later I awoke thinking what had happened was just a dream. I went downstairs to get some Advil. Netty and Jack heard the rumbling in the kitchen and rushed down to see if I was ok. Well, I was fine physically but mentally I broke down.
You see, I only had a couple weeks to go before I could get the licence back, but now I have to start back at square one.
The following week I did have an appointment with the neurologist, so I just stuck with that appointment. However I did make a call to him and he upped the medication. Yet, I think the upped dosage took a few days to kick in as I was proceeded to have 4 more seizures that week, albeit minor ones.
So I’ve been very depressed, stress, and down right bitter that the is no concrete solution to what is going on in my brain.
I prepared questions for my doctor as well did my own on line research about the medication I was on as well as diagnosis for a seizure disorder. Though the doctor at Mass General did not give me any new information or definitive answers to what the hell is going on.
Also, I learned from my therapist as well as my primary care doctor that even though the seizures are not directly caused by the HIV, the HIV could be affecting the intensity as well as severity of the. So my primary doctor is going to set up a appointment with a new doctor at Beth Israel Hospital in Boston. This doctor I am tod deals directly with HIV patients who are also diagnosised with a seizure disorder.
So naturally I’ve been a little edge and not very pleasant, especially when Netty complains about minor issues. So there have been a few battle royals within the last month whether it is about our short fuses, or my lack of employment. But the ironic thing is, even though seizures can be caused by extreme stress, they only seem to occur a week after Netty & I kiss and make up? WTF is up with that? Who know so I’m just going to try and chill out tonight and not over analyze because since Netty and I are back on cordial terms, I’ll probably have another seizure tonight? Or maybe I’ll just pick another fight with her, just to ensure another seizure doesn’t occur. We will see?
Well let me disclose the major concern that has me distracted. I know I haven’t been in the mood to be writing updated about my condition. It’s just I needed time to the adjustments of living back with Netty & Jack. But also about 3 weeks ago, I had a rough week health wise. It seems I can’t go longer than two months with out having a seizure.
It happened two days before my 35th birth day, I had a major one while watching Tv in bad. It was so intense in its on set that I Blacked out and fell off the bed and either my arm or my leg was banging against the floor. I did not regain coniousness until Netty & Jack came upstairs and was yelling my name. At that point, still woozy, I crawled back into bed saying I was ok. However, a few hours later I awoke thinking what had happened was just a dream. I went downstairs to get some Advil. Netty and Jack heard the rumbling in the kitchen and rushed down to see if I was ok. Well, I was fine physically but mentally I broke down.
You see, I only had a couple weeks to go before I could get the licence back, but now I have to start back at square one.
The following week I did have an appointment with the neurologist, so I just stuck with that appointment. However I did make a call to him and he upped the medication. Yet, I think the upped dosage took a few days to kick in as I was proceeded to have 4 more seizures that week, albeit minor ones.
So I’ve been very depressed, stress, and down right bitter that the is no concrete solution to what is going on in my brain.
I prepared questions for my doctor as well did my own on line research about the medication I was on as well as diagnosis for a seizure disorder. Though the doctor at Mass General did not give me any new information or definitive answers to what the hell is going on.
Also, I learned from my therapist as well as my primary care doctor that even though the seizures are not directly caused by the HIV, the HIV could be affecting the intensity as well as severity of the. So my primary doctor is going to set up a appointment with a new doctor at Beth Israel Hospital in Boston. This doctor I am tod deals directly with HIV patients who are also diagnosised with a seizure disorder.
So naturally I’ve been a little edge and not very pleasant, especially when Netty complains about minor issues. So there have been a few battle royals within the last month whether it is about our short fuses, or my lack of employment. But the ironic thing is, even though seizures can be caused by extreme stress, they only seem to occur a week after Netty & I kiss and make up? WTF is up with that? Who know so I’m just going to try and chill out tonight and not over analyze because since Netty and I are back on cordial terms, I’ll probably have another seizure tonight? Or maybe I’ll just pick another fight with her, just to ensure another seizure doesn’t occur. We will see?
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